Patient Resources for Eosinophilic Esophagitis


Find information online for patients and parents. Miraca Life Sciences is not affiliated with any of these organizations.

AAAAI (American Academy of Allergy Asthma & Immunology)

  • Professional organization with 6,800+ members of allergists/immunologists in 73 countries

ACAAI (American College of Allergy, Asthma & Immunology)

  • This organization also is an American affiliate of WAO.

APFED (American Partnership for Eosinophilic Disorders)

  • Organization that provides numerous resources related to eosinophil-associated disorders

CHOC Children’s Eosinophilic Esophagitis Clinic

  • Based in Orange, Calif., this center is a multidisciplinary clinic “dedicated to treating all of the symptoms of” EoE
  • List of patient resources

Cincinnati Center for Eosinophilic Disorders

  • Comprehensive clinic with experts in diagnosis, treatment and research for eosinophilic disorders

CURED (Campaign Urging Research for Eosinophilic Disease)

  • Advocate group for EGIDS

Empower

  • This group in Washington state is a resource for EoE patients. Its Facebook page includes a survey from researcher Evan Dellon, MD
  • Facebook page

EoE information from AGA (American Gastroenterologists Association)

  • Reference information for both patients and physicians.

Eosinophilic Family Coalition

  • Non-profit support group with a mission to support and enhance the lives of families living with Eosinophilic Disorders

Eosinophilic Family Support Network

  • Facebook group with more than 5,000 members, providing a wide network for patients to connect

Eosinophilic Tucson

  • Support group based in Tucson, Ariz., with some touching patient stories

Lab of Marc Rothenberg, MD, PhD, at Cincinnati Children’s Hospital Medical Center

NASPGHAN (North American Society for Pediatric Gastroenterology, Hepatology and Nutrition)

  • Professional organization with 1,800+ pediatric gastroenterologists dedicated to improving digestive health and nutrition of children

World Allergy Organization (WAO)

  • Global forum for allergy, asthma and clinical immunology. In June 2012, the annual meeting topic was “Eosinophilia and Co-Morbid Conditions,” of which Dr. Marc Rothenberg was a presenter. The WAO Journal includes clinical reviews, original research, position papers, and epidemiological studies.

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